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Mother started an organisation to raise money for the rare condition of her son

A mother is fighting for the life of her son. In a rare instance, she has started a foundation to collect money for the disease of her son. The mother in question is Monica Weldon who has her son Beckett suffering from the disease caused by an alteration(mutation) in the crucial SYNGAP1 gene.

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A new drug AV-101 with the possibility of treating Huntington’s disease receives patent

A new landmark decision has been made which will have a staggering effect in the field of Huntington’s disease. So, there has been a grant of a patent to VistaGen Therapeutics Inc. for the drug AV-101 which can be used for the treatment of disorders like

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A young girl at Stanford is working on helping people suffering from Huntington’s disease

A young girl from Thailand, Oranicha “Natty” Jumreornvong, has won an early admission into the FlexMed program which is a part of the Icahn School of Medicine located in New York. Jumreornvong was offered this admission, when she was in her 1st year

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Event at Vyne Road for getting money for Huntington’s Disease Association

One of such events is going to happen on 25th November on Vyne Road in the premises of The Vyne Community School. This event is going to be organized by Matthew Grant because his mother-in-law Arlene Whitehead, was diagnosed with the disease and later died from it in 2016.

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An exhibition event to be held for generating funds for HDA

Efforts are pouring in from all over the world to aggregate money for the purpose of Huntington’s disease. One of these unique efforts is the return of the print exhibition “Little Print Shop of Horrors” which happens every year. These printed posters are the production of Creative Spark which is an agency in

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A Huntington’s disease Charity Ball event to be held on 18th November

Huntington’s disease has raised a concern everywhere and people want to add their portion of help. Now, there’s a very exciting new event related to Huntington’s disease which will be held on November 18th at Padbrook Park Hotel situated in Cullompton. This event which is a ball is the result of the efforts

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A Hope Walk for HD by ArchCare to be held on November 4

Huntington’s disease has been evoking attention from people and organizations unanimously. Now, there is another Team Hope Walk which is going to be organized in Hudson Valley on the day of November 4. The Walk will cover a distance of 2.56 miles and will start at the venue of 61 Parker Avenue

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Evotec has received $5 million payment from Celgene for iPSC approach

Evotec has won its first payment of $5 million from Celgene with whom it signed a contract in the year 2016. This company is developing medicines which will serve as a cure for the neurodegenerative disorders including Parkinson’s disease

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Suven Life Sciences gets a patent for compounds in development as HD drugs

There has been an astounding development concerned with the purpose of treating Huntington’s disease in the future. There are compounds getting developed for treating Huntington’s disease and other neurodegenerative disorders.

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Huntington’s Disease Awareness event on 14th October

Huntington’s disease is now a major issue for people. That’s why there’s so much of concern about this. There are events which are happening all the time to make people more aware of it. One of such events is going to be held on October 14th in Dakota organized by the HDSA Northern Prairie branch. The venue of

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HD day to be held on October 6th in Erlanger

A Huntington’s disease day will be organized on 6th October by a Huntington’s disease clinic located in Erlanger. This clinic has been opened just yesterday. This newly opened clinic named Erlanger’s Huntington’s disease Clinic has been opened up in collaboration between the University of Tennessee

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50 year old to run 63 marathons to inform people about HD

It’s an exciting news for the participants of the 30th September Charity event for Huntington’s disease to be organized in Orange. This event will now feature the famous car racer Blake Aubin with his car, Renault Megane 275. As we had already told, this event plans to get the largest

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Aubin Blake to participate in an HD Event

It’s an exciting news for the participants of the 30th September Charity event for Huntington’s disease to be organized in Orange. This event will now feature the famous car racer Blake Aubin with his car, Renault Megane 275. As we had already told, this event plans to get the largest

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Market for the vocal bio markers to detect HD speech impairment to Expand

Research has been happening all over the world for the development of HD drugs. One of the most important gadgets used in this field is the vocal biomarkers which are used for the purpose of analyzing any changes in speech to diagnosis the

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Patients opinion now important in HD cure

GeneFo is now going to organize an exploratory research based webinar which will help it to understand the implications of a patient’s psychological state on how it can affect his ability to cope with Huntington’s disease. This webinar will make sure that the organization can improve the

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GeneFo to have a webinar about Huntington’s disease

GeneFo is now going to organize an exploratory research based webinar which will help it to understand the implications of a patient’s psychological state on how it can affect his ability to cope with Huntington’s disease. This webinar will make sure that the organization can improve the patient’s insight into

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Event to be organized in Orange for Huntington’s disease

Ms. Rachael Brooking of the Orange district, New South Wales in Australia has planned an event on September 30 for all to increase concern about the Huntington’s disease. Stephen Hall, Australian author, and an actor is going to be the Master of ceremonies. Her mother and brother are sufferers of the disease although Rachael was not found to be suffering

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A Charity event for Huntington’s disease on September 30

Huntington’s disease has raised so much awareness among people that they are coming forward to support this cause. It’s important to understand that only love and appreciation from the society for the sufferers of this disease can help them mitigate its symptoms. One such event, Shepherd’s Shuffle Charity Event, to … Continue reading A Charity event for Huntington’s disease on September 30

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Team Hope Walk for Huntington’s disease

  A Team Hope walk is going to be held on 10th September from 10 am-12 pm, at Belmont Lake State Park, in West Babylon, New York to make people know the objective of Huntington’s disease Society of America (HDSA). Get registered for this event till 4:00 pm today. These … Continue reading Team Hope Walk for Huntington’s disease

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Use of marijuana is allowed for HD patients in the New York state

  Marijuana is getting used in the New York City to be given to the patients who are suffering from Huntington’s disease. But there are certain requirements that have to be fulfilled in order to obtain a license for prescribing this substance to HD patients which are listed below:   … Continue reading Use of marijuana is allowed for HD patients in the New York state

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Scientist Jennifer Doudna has got a financial grant for HD gene editing

A scientist has received a grant for conducting research on the cure for HD.

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MLB Trade Brings Relief Pitcher Closer To His Mother, A HD Patient

Typically, moves on MLB trade deadline day are made with the intention of putting World Series contenders in a better position to win.

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CRISPR Star Jennifer Doudna Calls For Debate On Embryo Editing

After Jennifer Doudna improved the technology known as CRISPR to edit human genomes, a long-awaited, and sometimes feared, milestone arrived.

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Quincy Man Sacrifices As Wife, Sons Battle HD

Rich Bliven has endured immeasurable heartache over the past few decades watching his wife slowly fade away before his eyes.

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Boy Fighting With Juvenile HD Meets Elvis

Aidan Smith can now say he met Elvis. The 11-year-old is also living with Juvenile HD that doesn’t have a cure. Aidan’s disease is progressing.

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The Grief of Huntington’s Disease

My grief started the day we found out my husband had HD [Huntington’s disease]. At that time I grieved the life I knew we would never have.

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HD Patients And Families Can Get Telehealth Consults

A telehealth resource that facilitates free online therapy sessions for Huntington’s disease patients and their families now is available across the nation.

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Cost-Effective Way To Diagnose HD Coming To Microsoft’s Imagine Cup

With imagination, creativity and a little bit of help from Microsoft, 3 university students have discovered a way to identify and diagnose HD

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Three UK Groups Push To Raise Awareness For Huntington’s Disease

Three different groups from the United Kingdom are staying active this week in their efforts to raise awareness of and funds for HD research.

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Friday Night Lights Alum Scott Porter Expecting Daughter

Former Friday Night Lights star Scott Porter is expecting a daughter. Wife Kelsey Porter is pregnant with a baby girl by sharing post on Instagram.

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GM Sheep Deployed In Fight To Treat HD

Genetically Modified Sheep brought to UK for research into incurable brain condition, which affects more than 6,700 people in the country.

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A Girl Raises Awareness For HD While Raising Cash For Charity

A girl donned her walking boots to raise awareness of a rare nerve disorder which has affected her grandfather and raised a substantial sum for charity

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Free Telehealth Counselling For HD Families

HDSA is launching a new technology partnership with leading telehealth to offer free Telehealth Counselling to people affected by Huntington’s disease.

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Kensington, Minnesota Farm Couple Raising Sheep To Help In Treating Huntington’s Disease

Dan and Kay Persons, sheep producers in rural Kensington in Western Minnesota, are hoping to play a role in the fight to cure Huntington’s disease.

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Is ECT a Good Treatment Option for Huntington’s Disease Patients?

Can electroconvulsive therapy (ECT) help Huntington’s disease (HD) patients manage their depression? That was the question asked by Antonio Nascimento, MD and colleagues at the Mayo Clinic in Rochester, MN.

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Last Birthday Party Of Woody Guthrie, The Famous Folk Singer

In the memory of Woody Guthrie, the famous folk singer, who had a diagnosis of Huntington’s chorea, now called Huntington’s disease. In the spring of 1967, I was a junior at Queens College majoring in psychology. Our family doctor and neighbour, Dr Gross, knew a psychiatrist at Creedmoor State Hospital, a state mental hospital about 2 miles from my home in Queens Village.

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Join Team Hope Walk

Local families are uniting to provide help for today and hope for tomorrow at the Team Hope Walk, William Land Park Saturday, June 24, 2017. The ninth annual walk in this beautiful setting helps raise awareness of HD, support for local families and funds for ongoing research to find treatment and a cure.

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Allen Dean Olson Madeira, Ohio : A Celebration of Allen’s Life

A celebration of Allen’s life will be held Thursday at 3 p.m. at Rudes Funeral Home in Brookings with burial to follow at First Lutheran Cemetery. Allen was born in Vermillion on July 25, 1957, to O’Dean and Ardys Olson.

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Ex-truckie supporting two brothers with Huntington’s Disease brought to tears after watching Pope Francis’ audience with HD sufferers

ROLLING down the highways of western Queensland, former truckie Peter O’Leary could well have had the hit He Ain’t Heavy

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Woody Guthrie Folk Festival : A tribute to Jimmy LaFave, Arlo Guthrie, etc

The Coalition Woody Guthrie will host more than 100 acts at the 2017 celebration of the late musician’s birthday in July.

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How Globe Trotting Mascot Raises Awareness Of Cruel Disease That Runs In Families

Mascots promoting awareness of an hereditary disorder are travelling the worldfrom Niagara Falls to the Vatican.The individually-designed felt dogs

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26th Annual Huntington’s Disease Triathlon

26th Annual Huntington’s Disease Triathlon on Sunday, July 30th, 2017 in Miami, Florida. This is the only 100% charity triathlon. Your money goes directly to research to help find a cure for this inherited degenerative brain disorder. You can do the Sprint, Olympic or Aquabike

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As Chargers Leave, PR Director Stays In San Diego With Wife, Family

It was 2010. Gehlken was fresh out of college and wanted to prove he could make it as an NFL beat writer. After two seasons churning out stories at 15 bucks a pop, the San Diego Union-Tribune.

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Inspiration From Huntington’s Athlete Joshua Cohen

May was Huntington’s Disease awareness month. In honour of this, I thought it appropriate to publish this interview recently with triathlete Joshua Cohen. He was diagnosed with Huntington’s Disease

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Huntington’s Disease Is Going To Kill Him, But This Bellingham Scientist Is Tackling It Head On

Carroll was 25 when he learned he had Huntington’s disease. Huntington’s disease is relentless in its attack on brain cells.

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Educating Law Enforcement On Neurological Disorder(HD)

The Huntington Disease Society of America recognizes May as Huntington’s Disease month. We were initially contacted by an officer in the Des Moines area.

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Huntington’s Disease: The Pope Steps In To Help Raise Awareness

Francis Pope Steps In To Help Raise Awareness of Huntington’s Disease. He was meeting people with HD, an incurable neurological disorder.

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Kinzinger bill would expand Medicare coverage of people with Huntington’s disease

Tens of thousands of Americans disabled by Huntington’s disease would be ensured access to Medicare coverage under legislation

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Physical Activity Improves Symptoms of Early Huntington’s Disease, Study Shows

Physical activity may influence when a person gets Huntington’s disease. It has been shown to protect against loss of brain volume in adults aging normally.

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Help 4 HD International Hipe Day, Atlanta, GA

Highly Interactive Participation Education.An Education Day for families living with Huntington’s Disease. Auction to benefit Juvenile Huntington’s Disease

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